The importance of staying on CRYSVITA

XLH is a chronic, progressive disease and if left untreated, symptoms can get worse
That’s why it is important that every child with XLH has an established, consistent care plan that meets their needs.
Taking CRYSVITA as prescribed may help manage your child’s XLH
It’s important that your child receives CRYSVITA exactly as prescribed and does not miss a dose unless directed by their doctor.
When you talk to the doctor about CRYSVITA, make sure to discuss strategies that can help you and your child stick with their treatment routine at every stage of life.

Make sure you have a plan to help your child stay on CRYSVITA during all of life's changes
Some life changes are bigger than others, especially during transitional stages of life. But with some preparation, these changes don’t have to feel so overwhelming for you or your child.
These changes could include:
- Outgrowing their pediatric doctor (for adolescents)
- Moving to a new town
- Going to college
- Changing insurance providers
If your child has to change doctors for any reason, it's important to:
- Ask their current healthcare provider for help identifying another doctor who can continue to provide CRYSVITA
- Clearly communicate with their new doctor about how CRYSVITA may be helping them
- Discuss treatment goals for your child's XLH
- Have a conversation about what is, and what is not, working regarding their XLH treatment
CRYSVITA only works to treat XLH as long as your child continues to receive it as prescribed. That’s why it’s important to stick to their treatment plan.

Have questions about changing doctors or insurance?
Connect with a Kyowa Kirin Cares case manager, who can help you access resources.
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